What a Waste


As all or almost all heart transplant patients, I am on immunosuppressants to prevent my body from rejecting my heart. These medications are not cheap, by any means. I remember back to the days before I was released from my transplant center that my wife was out gathering up all of the prescriptions I was going to be on when I went home. I had to have a 30 day supply of everything before I was released. At that time, my insurance didn’t cover a 30 day supply, so she paid some where north of $4,000 for my meds. Later, my insurance kicked in and my out-of-pocket expenses dropped drastically.

Last winter my mail order drug company decided to change the source one of my anti-rejecton meds (generic Cellcept) from one manufacturer to another. This is a BIG NO-NO with my center. They want our meds to come from a constant and reliable source. So, while this was being sorted out, I ended up holding the bag, so to speak, of A LOT of medication I CAN’T use. Now, granted it only cost me $10 out-of-pocket, but it cost the company I worked for about $1,400.

I’ve tried to give this stuff away, but due to the way it was packaged (not tamper proof, sealed containers) I legally (Ohio law) can’t give it away, nor can any center accept it.

So, it looks like I’ll eventually have to throw away 1,080 capsules, of 250mg of generic Cellcept.

What a shame, what a waste!!

$$$$ headed for the trash?

About DAP

I am a heart transplant recipient and these are my stories and thoughts. My desire is to assist others pre or post heart transplant in anyway possible. Please feel free to contact me if you have a question.
This entry was posted in General, Heart Transplant and tagged , , , . Bookmark the permalink.

3 Responses to What a Waste

  1. Matt says:

    GREAT to hear you are doing okay!

    Check out my blog to:

    http://www.teamtransplant.co.uk

    I had my heart in 2009!

    Good luck and keep taking the pills!

    Matt

  2. Pingback: Meds Are Gone « My2ndheartbeat

  3. Margaret Kleiv says:

    Hello,I got a heart in 1998 and my meds. one is cellcept is generic.In fact so is the cyclosporine,started with sandiumme and another manuf.and over the years bought me to the generic.If you have not trashed the pills.I will accept them and pay the postage. God’s Blessings to you. Notifiy me with a e-mail if this is possible.I have had 5 different insurance changes since then.Co-pays now at 185.88 a month,then every so many months I have a co-pay 295.00.I get help to pay those income low enough to do that.Have to charge them on a credit card,get money back in 6 weeks.Must send reciepts in first.I don’t give up.I know God didn’t mean for all of us to be in the same income.If someone else can use them and has contacted you thats ok.I understand,God’s has been with” me” and always will be.Sincerely,heart”98″

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