Virtually each and every transplant patient has some “bumps in the road”, or medical issues, if you prefer during their transplant journey.
I had a number of them early on ….. lungs filled with blood immediately after transplant and I ended up on ECMO. Then there were blood clots, one in my groin that was the size of my fist. Another at the biopsy site on my neck about 2 months post transplant. The clots required Lovenox injections and later I switched to Coumidin. Both are nasty drugs, with nasty, for me, side effects. Months later I had an IVIG issue and that required me to have an infusion.
I have lots heart transplant friends. Some have had very few issues, some have had more than their share. Regardless of how many issues we have or haven’t had, we all hang together and we compare notes often, and continue to support each other. I think there is an unspoken reason for this comparison ……. we all know deep down that on any give day it could be “us”, with a problem. Issues can come up with very little or no notice and we file away these comparisons, issues and treatments so we know, to some degree, how we might deal with the problem if it arises. I also think it keeps that worrisome “FEAR” away as well.
If you are having an issue, I keep you in my prayers. If you aren’t having an issue, I still keep you in my prayers. Every prayer helps.