Please see the attached link from TRIO (Transplant Recipients International Organization)
Once again the transplant community is under attack. The folks in Washington are trying to LIMIT the availability of transplant medications under Medicare!
Please see this link – TRIO Action Center
Then click the link to comment. I sent my comment today.
Your comment is NEEDED to STOP this attack!!!
My2ndHeartBeat 
This is sooooooo NOT good! What next?!?
Ms A, Lord only know what’s next …. every year it seems to be SOMETHING negative. 😦
No! I need these medicines to live. However many my doctor’s prescribe. I have just as much right to live as any one else.
I’ll forward your comment to the appropriate people. I wish you the best!
Am I not worthy of living? I have done no wrong. I needed a transplant due to a rare birth defect. How can you condemn me to die? If you take away my Doctors ability to prescribe my medication as needed I will die. In a cruel way. I have had a rejection. It was very bad and I became very ill. Please let us live.
I’ll forward your comment to the appropriate people. I wish you the best!
My son needs the meds to survive!
I’ll forward your comment to the appropriate people. I wish you the best!
Please don’t let my daughter die ! It takes years of waiting for a life saving organ transplant so why would the drugs to keep her alive after receiving her new organ be discontinued by medicare ? The transplant surgery is paid for by medicare so it’s senseless to discontinue the meds necessary to keep her alive !!!
I’ll forward your comment to the appropriate people. I wish you the best!
I rely on my antirejection medications for survival!!!!!-
I’ll forward your comment to the appropriate people. I wish you the best!
Amen why take the meds !!!!!!
Heartbeat,
Thanks for the info. I was not aware of this, but I’m ALL over it now!!
Thanks Sheep! I KNOW you’ll be all over this. I appreciate you leading the way on so many of these issues. Be well my friend!
Please don’t limit. Thank you
I’ll forward your comment to the appropriate people. I wish you the best!
You need to reconsider. How many people do you think need this to live? Want a law suit?? You just might get it!! We all have a right to live and this medication let’s us live. Hum, maybe you want to ‘kill’ all of us off??!! Not going to happen. No matter how old or young we are, we still have many things that we give back to society. Hoping you all are not going through what we are. Have a nice day.
I’ll forward your comment to the appropriate people. I wish you the best!
Please do not limit or stop the coverage of these essential drugs.
I’ll forward your comment to the appropriate people. I wish you the best!
Why would they do this? If I reject then I will have to go into the hospital which would cost even more than my medications…makes no sense.
Having a transplant is stressful enough and now we have to worry if we will be able to afford our life saving meds
Agree, I will pass your comments along! Wish you well!
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Thank Nikki, for helping shine light on this important issue! Be well!!
Without our medication we would simply die! How can this even begin to be a topic brought up?Just skipping a dose can throw the organ into rejection. The real fight should be against the pharmaceutical companies for the outrageous prices.
I’ll pass your comments along! I wish you the best!
How outrageous you take away life saving drugs from the very people who’s life depends on them. Has this country completely void of caring for human life??? It’s bad enough that health care is so controversial here. I live in a European country that considers health care a human right. Now you are just slamming the door to life on all the people that need these drugs to live! This is a total disregard for human life and a complete void of compassion on the part of those who are trying to stop it. It is truly nauseating to see this happen in my country.
I will pass your comment along to the appropriate folks. Thank you!
If they pass this two things will happen. So many people will die without our daily anti-rejection meds or they will end up in the hospital very sick and it will cost even more to treat us. Then after discharge it will happen again. This is a resolving door until the obvious happens. Which is death. Why would you pay for us to have a transplant? I’ve been through rejection before and was I very lucky to make it out of the hospital alive. All to save money. Human lives matter more than saving money in healthcare. Being a heart transplant patient only 6 months post transplant is very hard. We have traveled a very hard road to get where we are. The pain and agony everyday wondering if we will make it another day. The mental and physical challenges we face everyday. This is the last thing we need to worry about. We were given a second chance at life, so let us live our life without worrying if we will make it another day. DON’T TAKE OUR MEDS AWAY FROM US. WE NEED THESE TO SURVIVE!!!!
I rely on antirejection meds…..
Most likely, the pharmaceutical lobby is pushing congress to do this so that they will have less resistance in the marketplace and then spike the price of these medications. Unfortunately we have a congress that is much more amenable to lobbyist money than the needs of their constituents, so we need to raise a big voice about this.